Sail Ships and Icebergs

Have you ever held on to an email or dog eared a page on a book or added it to your favorites online because it touches you in a way that you want to watch, read or look at it again?  Often times when I find myself doing this is because, I save things that I feel will be great topics for my blog or might simply be something that just gives me peace of mind to review again at a later time.

When we learned about Cody’s Autism, I was a sponge and there was pretty much nothing that I did not read, research or try to understand.  I surrounded myself with other parents going through the same journey and created a small discussion group where moms could connect with moms to talk about therapy options, insurance, successes, behavioral issues and anything that was on their mind.  And almost 2 years later, I am still doing this! #neverstoplearning

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Almost a year ago, I saved an email that I shared with my in-laws and my parents but mostly saved it for Cameron. Explaining Autism to a teenager is a little different than to a younger sibling.  They have already observed and been around children with Autism at their school and have seen how wide the spectrum actually can be with their own peers in their classrooms and in special needs classrooms.

Cameron had more questions for us and was eager to better understand where his brother fell on this spectrum and if wanted to know what his future will hold.  Very similar to how an adult would view when they learn about their child has Autism but there still was a gap on sharing and having an older sibling understand.  See, parent resources are not necessarily the best solution. Yes, it can share the basic knowledge but Cameron’s relationship with his brother is much different than a sibling that is closer to the same age or a parent. Parent resources do not share this and sibling resources we have purchased are geared for brothers and sisters much younger and closer to 5-10 years old.  There really is nothing for brothers that are a decade a part.

I ran across this video and thought this was the closest that I thought would give Cameron a understanding. This video touched me.  Kids Explain Autism, And Why Being Different Is Okay.  This less than 4 minute film helps children understand others on the autism spectrum and how they can accept and relate to them.

Watch Video Here

Sail ships and icebergs was my ah ha moment when I watch this.

Educating an understanding of Autism is needed today.  These photos below shows you today a little about Cody’s receptive language when you request him to “put on a hat.”  Here is what his amazing mind thinks that I captured in a series of photos back to back in less than 20 seconds from each other.

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Thinking about putting on a hat.
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Attempting to put on hat
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Can I put on the hat like this? Hat is on! 
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I will just put the hat on my hand instead!

Does he not have the best smile ever?

 

Published by mamalamaneustupa

Bio My name is Shelley Neustupa. I am a mother of two cool boys and a wife of 22 years to my high school sweetheart. My oldest son attends the University of Oklahoma. Boomer! My youngest is in 2nd grade and was diagnosed with Autism and Mixed Receptive Expressive Disorder at age 2. Since his diagnosis, I promised him I would advocate and educate as hard as he works each day in therapy. I began writing and have been able to touch many parents that may be new to this journey providing them with actual experiences (not candy coated), support and resources through my entries. Writing is my therapy and my hope one day that my nonverbal son will be able to take these diaries and speak about his own journey and how autism relates to his own experiences. Who knows he and his older brother may become National Speaker’s one day? Come along on our journey to better understand our lives through the eyes of a boy with autism, his Skilled Companion dog Jude, his big brother (and best friend) and mom and dad. My raw vulnerability captures the everyday moments of our journey and will bring even more awareness. A week does not go by where we do not learn something new about ourselves and I want to share these chapters with you. My Sons Undeniable Strengths… Extremely smart and figures out things quickly. Has a memory that allows him to remember more things than I could ever hope for. Persuasive by his personality and sheepish looks. Overabundance of stamina and strength. Loves the outdoors. Enjoys life and always has fun with an unforgettable smile. You can find us here: Writer: Autism Through His Eyes Facebook Instagram YouTube Pinterest Canine Companions for Independence News Interview Cody and Skilled Companion Jude - Our Story

One thought on “Sail Ships and Icebergs

  1. I would like to see a video of Camo expressing his thoughts and maybe answer a few questions
    about his autistic brother. Mom….you could produce it since you are so good at that. Cam could show it
    as a classroom project. I bet other parents who have siblings 10 years apart would love it since there
    is not much perspective out there on this. Great blog!

    Liked by 1 person

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