Dear Cody

Dear Cody,

You just woke up. Its 5:46am. You still have not adjusted your schedule with day lights savings time yet. Its ok because I was already awake sitting in the living room in the dark sipping coffee and all I can hear is the beeping sound from the garage because the backup battery on our alarm system needs replaced. I am listening to you gabber away in your bedroom upstairs through the monitor. You are just about to start your busy 8 hour therapy day and all I can think about is your future. It is weighing very heavy on my heart this morning. I am just a little nervous of what the coming years will bring for you for the much needed therapy we need to be able to provide. I don’t think any of the ACA plans are perfect by any stretch of the imagination but what I do know is how much our medical bills have been, we’d be bankrupt without this secondary policy in place this past year. At least we have something right now so we were able to give you the required therapy needed and plenty of hours your doctors required.

It’s up in the air of what you will now have access to moving forward but I pray we figure it out (and figure out fast) an ability to generate a nationwide healthcare package with some options with fewer limitations like we keep hearing will happen in 2017. This is a scary time for your daddy and I right now because we are waiting to see what plan options we will be offered to cover your much needed therapy and support you and your brother.

One thing you need to know, is I won’t give up. I will never stop fighting to offer you the very best. It will be hard and I won’t lie we will struggle but we will never give up. Hilary Clinton just said in her concession speech, “ I count my blessings every single day that I am an American, and I still believe, as deeply as I ever have, that if we stand together and work together with respect for our differences, strengthen our convictions, and love for this nation, our best days are still ahead of us.”

So today, I am going to believe that too. My hopes are that myself and all the special needs families that I have met over the last few years will CONTINUE to come together. This is when we fight together. This is when we respect each other and stand together. This is when we continue to contact our legislators on issues and voice our concerns  on what our children need. This is when we pray we have more health coverage, more awareness and focus and better future in your coming years.

Cody, you are the 1 and 68 and there are many more friends just like you.

I love you,
Mommy

#AutismAwarenessEveryday

Published by mamalamaneustupa

Bio My name is Shelley Neustupa. I am a mother of two cool boys and a wife of 22 years to my high school sweetheart. My oldest son attends the University of Oklahoma. Boomer! My youngest is in 2nd grade and was diagnosed with Autism and Mixed Receptive Expressive Disorder at age 2. Since his diagnosis, I promised him I would advocate and educate as hard as he works each day in therapy. I began writing and have been able to touch many parents that may be new to this journey providing them with actual experiences (not candy coated), support and resources through my entries. Writing is my therapy and my hope one day that my nonverbal son will be able to take these diaries and speak about his own journey and how autism relates to his own experiences. Who knows he and his older brother may become National Speaker’s one day? Come along on our journey to better understand our lives through the eyes of a boy with autism, his Skilled Companion dog Jude, his big brother (and best friend) and mom and dad. My raw vulnerability captures the everyday moments of our journey and will bring even more awareness. A week does not go by where we do not learn something new about ourselves and I want to share these chapters with you. My Sons Undeniable Strengths… Extremely smart and figures out things quickly. Has a memory that allows him to remember more things than I could ever hope for. Persuasive by his personality and sheepish looks. Overabundance of stamina and strength. Loves the outdoors. Enjoys life and always has fun with an unforgettable smile. You can find us here: Writer: Autism Through His Eyes Facebook Instagram YouTube Pinterest Canine Companions for Independence News Interview Cody and Skilled Companion Jude - Our Story

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