You just woke up. Its 5:46am. You still have not adjusted your schedule with day lights savings time yet. Its ok because I was already awake sitting in the living room in the dark sipping coffee and all I can hear is the beeping sound from the garage because the backup battery on our alarm system needs replaced. I am listening to you gabber away in your bedroom upstairs through the monitor. You are just about to start your busy 8 hour therapy day and all I can think about is your future. It is weighing very heavy on my heart this morning. I am just a little nervous of what the coming years will bring for you for the much needed therapy we need to be able to provide. I don’t think any of the ACA plans are perfect by any stretch of the imagination but what I do know is how much our medical bills have been, we’d be bankrupt without this secondary policy in place this past year. At least we have something right now so we were able to give you the required therapy needed and plenty of hours your doctors required.
It’s up in the air of what you will now have access to moving forward but I pray we figure it out (and figure out fast) an ability to generate a nationwide healthcare package with some options with fewer limitations like we keep hearing will happen in 2017. This is a scary time for your daddy and I right now because we are waiting to see what plan options we will be offered to cover your much needed therapy and support you and your brother.
One thing you need to know, is I won’t give up. I will never stop fighting to offer you the very best. It will be hard and I won’t lie we will struggle but we will never give up. Hilary Clinton just said in her concession speech, “ I count my blessings every single day that I am an American, and I still believe, as deeply as I ever have, that if we stand together and work together with respect for our differences, strengthen our convictions, and love for this nation, our best days are still ahead of us.”
So today, I am going to believe that too. My hopes are that myself and all the special needs families that I have met over the last few years will CONTINUE to come together. This is when we fight together. This is when we respect each other and stand together. This is when we continue to contact our legislators on issues and voice our concerns on what our children need. This is when we pray we have more health coverage, more awareness and focus and better future in your coming years.
Cody, you are the 1 and 68 and there are many more friends just like you.
I love you,