Breaking the CO-DE

When you see this graphic what comes to mind to you? Perhaps a keyboard with some letters or an eye exam chart or letters symbolizing; breaking the code?


For me, it reminds me of a sweet little voice filled with lots of giggles saying his name for the first time, “Co-De, “Co-De, “Co-De!” I cannot tell you how many times I have listened to this video this week!  Or for that matter how many people I shared it with.

Watch here

When I think to myself why now? Why can he suddenly after trying for 2 years, he out of the blue knows how to say his name?  He knows his name and he will turn his head or look up to you if you call it but he could never get those 4 sweet letters out to say, Co-dy.

Cody has watched over and over a series of Preschool Prep videos with letters, numbers, colors, phonics, shapes, etc.  The other day I saw each letter flash across the screen, I thought to myself, hum…”Cody knows his letters, shapes, colors, numbers and indeed can label a bunch of words, yet, he is still absolutely fascinated by the alphabet and counting videos the most”.  I thought to myself that surely over time, these alphabet and counting videos would lose their appeal, but, they haven’t … not after a year or so of watching them.   What made the alphabet and counting so intriguing to him?   If you think about it, the alphabet and counting provides building blocks on which so much of “the whole” in life are formed.   They are the lowest level of language and mathematics… the lowest common denominator to so much more in life.

The more I pondered this puzzle of language with children with autism, the more all the pieces fell into place.    For Cody, his therapists and I teach things based on a building blocks approach from the very lowest level up.  It took us a while to understand how he learns but now that we know we are starting to break the CODE.

We discovered that Cody’s learning somehow has to do with “order”… So, I  thought of the alphabet as it related to order and specifically, to the “parts of a whole” when you think about communication.  And that is the key to it… the alphabet is at the core of communication… Once Cody learned his letters, we then in an orderly fashion taught him the sounds each letter makes.  We are now identifying these sounds in whole words, blending them and drawing them!

A typical child will learn that a “dog” is this funny thing with fur and a tail.  That, if mom points to “a dog” and says “dog”, the lesson has been learned… the label given, the association made.   For a typical child, the association is simple.

Not so simple for a child with autism.   

Early on, I believe Cody needed to have a label for everything to understand before association could be made and over time this has improved and not needed for everything.  This is done through flash cards, (receptive and expressive labeling) then matching the flash cards of the word to the actual object or an array of pictures of the object .  These steps were necessary in this order to just learn “dog”  As you can see it was several parts to grasp before getting the whole. 

To understand where the “word” comes from, Cody must first understand the phonics behind the word … the sounds that make up the word.   Then, to understand the phonics behind the word, he first must understand that letters have sounds.   To understand the concept that letters have sounds, he must first understand that letters are symbols that represent something... and that this “something” was the code that needed to be broken!

By this, I mean that in order to understand almost everything in his world, Cody must first understand how every aspect of every part fits into the “whole”.   All these things must first be broken into their respective “parts” for the whole to be understood.

Might need to re read this last few paragraphs as I was trying to break it into parts that typically is not done or needed when trying to explain in a “typical world” but trying to explain through the eyes of Cody.

Think about what a pizza looks like?  Did you picture a ball of fresh dough ready to be rolled out to add all your fresh toppings and baked?  Or, did you picture a whole piece with your favorite toppings freshly baked straight out of the oven?

Of course, you pictured your whole piping hot pizza complete and not the picture of all the parts; the ball of fresh dough and topping that needed to be added in a certain order.

So just as Cody, he needs to learn from the beginning in parts, similar to building blocks in order for the code to be broken.  The code of communication.  I believe the code is starting to be broken because we now understand how he learns.

Once each part is understood, the whole can then be “put back together” and understood for what it is. In this particular case for Cody, we will continue to focus on COMMUNICATION.

He knows his letters and sounds that letters make and receptively, he knows a ton of sight words.  We will continue to put the “letters” and “sounds” together to “make things”….

It’s as though he has de-coded something up their in his brain when he figured out that letters have sounds, and sounds, put together make words, and words provide labels for things… and these labels help understand “everything else”. You can watch his pure joy he feels when he says Co-de in his video!  In no time at all, I have complete confidence that my boy will develop the ability to read and will be having conversations with me and this will not be in my dreams anymore.







Published by mamalamaneustupa

Bio My name is Shelley Neustupa. I am a mother of two cool boys and a wife of 22 years to my high school sweetheart. My oldest son attends the University of Oklahoma. Boomer! My youngest is in 2nd grade and was diagnosed with Autism and Mixed Receptive Expressive Disorder at age 2. Since his diagnosis, I promised him I would advocate and educate as hard as he works each day in therapy. I began writing and have been able to touch many parents that may be new to this journey providing them with actual experiences (not candy coated), support and resources through my entries. Writing is my therapy and my hope one day that my nonverbal son will be able to take these diaries and speak about his own journey and how autism relates to his own experiences. Who knows he and his older brother may become National Speaker’s one day? Come along on our journey to better understand our lives through the eyes of a boy with autism, his Skilled Companion dog Jude, his big brother (and best friend) and mom and dad. My raw vulnerability captures the everyday moments of our journey and will bring even more awareness. A week does not go by where we do not learn something new about ourselves and I want to share these chapters with you. My Sons Undeniable Strengths… Extremely smart and figures out things quickly. Has a memory that allows him to remember more things than I could ever hope for. Persuasive by his personality and sheepish looks. Overabundance of stamina and strength. Loves the outdoors. Enjoys life and always has fun with an unforgettable smile. You can find us here: Writer: Autism Through His Eyes Facebook Instagram YouTube Pinterest Canine Companions for Independence News Interview Cody and Skilled Companion Jude - Our Story

3 thoughts on “Breaking the CO-DE

  1. Shelley……you truly know, just as Cody, how to put the pieces together. And someday Cody will
    beautifully write as you do!

    Liked by 1 person

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