Keep Asking Questions

People often ask me why I publish a blog and have a social media page specifically for Cody to share our journey.

THE ANSWER:

When Cody received his diagnosis that first year sucked.

For Cameron, he was processing and trying to learn how to cope, fit in, best advocate, how he could help and mostly how to adjust in his everyday world with school and friends.  And honestly, he was going through a grieving process because what he envisioned life to be would with his little brother would be done so differently.  Looking back we would not change a thing but that initial day when we took him for a walk after school to share what we learned about his brother will never leave my heart.

Brad and I had all the same emotions as Cameron on top of an overwhelming amount of pressure to ensure we were offering the very best doctors and therapies for him.  It was not like going to a doctor and them telling you,  “Here is your diagnosis and here is your medicine.”  This diagnosis opens a door to a maze of many different directions to go. It was very scary to figure out the best solution that best fit for him. Hell, we did not know what the best for him looked like at this point and all at the same time everyone kept saying, “Early Intervention is KEY.”  There was so much pressure.

maze

So, we started by getting therapies lined up to treat the symptoms (his developmental delays) we were observing.  We then  literally starting reading, researching, asking people, learning who to trust and guide us to the best possible solution for Cody.

That first year was a blur.  During this year, my coping tool was to write. I then decided, if I could help just 1 parent when they get their child’s diagnosis, then that would keep giving me hope.

That is when I made a promise to my boys that I would fight just as hard as they both do by spreading education and awareness to autism specially to new parents that are starting their journey. If you only knew how many behind the scene questions we get asked about autism every day.  This is what fuels me. I knew nothing about autism before Cody and find much passion, love and respect when people seek questions on wanting to understand more.

Just this week, I had several people ask about Cody starting Kindergarten and what his days at school look like.  Loved this question.

I am very blessed to be in a school district that offers a Communications Class.  He shares a class with 6 other AUsome boys and he and his teacher have a vast amount of goals that they work very hard on independently.  This all happens 4 mornings a week totally 12 hours. During this time , he also goes and spends time in a Kindergarten class room with typical peers for circle time, recess, lunch, etc.  He also attends OT and Speech on a weekly basis.  Every child who receives special education services through their district, will have their own IEP (Individualized Education Program)  designed specifically for their needs.  The rest of his days he is in outside therapy that is one on one.

Cody literally has a village all focused on working on his future. There are currently 13 amazing Educators and Therapists that all work together for the same common goal. And our vision and hope is for day he is attending more and more time in the typical classroom with his peers.

If you can’t already tell, Brad and I will never give up.  And the BEST part of publishing this blog 3 some odd years ago, I never thought of the outpouring support we have gained by so many too. It’s a win win.

Class of 2031

 

 

Published by mamalamaneustupa

Bio My name is Shelley Neustupa. I am a mother of two cool boys and a wife of 22 years to my high school sweetheart. My oldest son attends the University of Oklahoma. Boomer! My youngest is in 2nd grade and was diagnosed with Autism and Mixed Receptive Expressive Disorder at age 2. Since his diagnosis, I promised him I would advocate and educate as hard as he works each day in therapy. I began writing and have been able to touch many parents that may be new to this journey providing them with actual experiences (not candy coated), support and resources through my entries. Writing is my therapy and my hope one day that my nonverbal son will be able to take these diaries and speak about his own journey and how autism relates to his own experiences. Who knows he and his older brother may become National Speaker’s one day? Come along on our journey to better understand our lives through the eyes of a boy with autism, his Skilled Companion dog Jude, his big brother (and best friend) and mom and dad. My raw vulnerability captures the everyday moments of our journey and will bring even more awareness. A week does not go by where we do not learn something new about ourselves and I want to share these chapters with you. My Sons Undeniable Strengths… Extremely smart and figures out things quickly. Has a memory that allows him to remember more things than I could ever hope for. Persuasive by his personality and sheepish looks. Overabundance of stamina and strength. Loves the outdoors. Enjoys life and always has fun with an unforgettable smile. You can find us here: Writer: Autism Through His Eyes Facebook Instagram YouTube Pinterest Canine Companions for Independence News Interview Cody and Skilled Companion Jude - Our Story

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

<span>%d</span> bloggers like this: