People often ask me why I publish a blog and have a social media page specifically for Cody to share our journey.
When Cody received his diagnosis that first year sucked.
For Cameron, he was processing and trying to learn how to cope, fit in, best advocate, how he could help and mostly how to adjust in his everyday world with school and friends. And honestly, he was going through a grieving process because what he envisioned life to be would with his little brother would be done so differently. Looking back we would not change a thing but that initial day when we took him for a walk after school to share what we learned about his brother will never leave my heart.
Brad and I had all the same emotions as Cameron on top of an overwhelming amount of pressure to ensure we were offering the very best doctors and therapies for him. It was not like going to a doctor and them telling you, “Here is your diagnosis and here is your medicine.” This diagnosis opens a door to a maze of many different directions to go. It was very scary to figure out the best solution that best fit for him. Hell, we did not know what the best for him looked like at this point and all at the same time everyone kept saying, “Early Intervention is KEY.” There was so much pressure.
So, we started by getting therapies lined up to treat the symptoms (his developmental delays) we were observing. We then literally starting reading, researching, asking people, learning who to trust and guide us to the best possible solution for Cody.
That first year was a blur. During this year, my coping tool was to write. I then decided, if I could help just 1 parent when they get their child’s diagnosis, then that would keep giving me hope.
That is when I made a promise to my boys that I would fight just as hard as they both do by spreading education and awareness to autism specially to new parents that are starting their journey. If you only knew how many behind the scene questions we get asked about autism every day. This is what fuels me. I knew nothing about autism before Cody and find much passion, love and respect when people seek questions on wanting to understand more.
Just this week, I had several people ask about Cody starting Kindergarten and what his days at school look like. Loved this question.
I am very blessed to be in a school district that offers a Communications Class. He shares a class with 6 other AUsome boys and he and his teacher have a vast amount of goals that they work very hard on independently. This all happens 4 mornings a week totally 12 hours. During this time , he also goes and spends time in a Kindergarten class room with typical peers for circle time, recess, lunch, etc. He also attends OT and Speech on a weekly basis. Every child who receives special education services through their district, will have their own IEP (Individualized Education Program) designed specifically for their needs. The rest of his days he is in outside therapy that is one on one.
Cody literally has a village all focused on working on his future. There are currently 13 amazing Educators and Therapists that all work together for the same common goal. And our vision and hope is for day he is attending more and more time in the typical classroom with his peers.
If you can’t already tell, Brad and I will never give up. And the BEST part of publishing this blog 3 some odd years ago, I never thought of the outpouring support we have gained by so many too. It’s a win win.
Class of 2031