A friend shared this meme this week and it was perfect timing. It said, “If hugs were snowflakes, I’d send you a blizzard.” Man, I needed this. This week autism has been tough. Monday afternoon, Cody came down with a fever. After reaching out to his teachers and therapists, all I would hear is there is a virus stomach bug and some nasal congestion going around. As a parent, with a child who is nonverbal, this means many sleepless nights.
You see, last spring this very similar virus was going around, and Cody had gotten sick in the middle of the night. He had no way of calling out to me or coming to me so he problem solved to his best ability and just slept at the foot of his bed until I came in the next morning. I for sure did not get Mom of the Year Award for that one.
So, this week, I have been sleeping with the monitor all the way up with video watching his every move to ensure, I could be there for him in the event he needed me. So fast forward to today. STILL has just fever. We have a doctor’s appointment at 2:30 today which leads to the main purpose I had the sudden urge to release and write this blog.
Cody’s well check a month ago was a very tough experience for this little guy. We have used the same doctor since birth, but it was a new office/new environment. It became evident that we were not going to be able to get his well check completed, the doctor allowed us to come every day that week to help build a routine and comfort level to the environment. By the 6th visit and having my therapists work with him all week and creating a social story book we read a lot, we were able to get a at least a partial check completed.
Hoping to get a break from the doctor, we were not so lucky and now have to go back to the doctor today. We started reading our social story and talking about seeing the doctor as soon as I booked the appointment yesterday. I am always a half full glass kind of Mom, but the reality is I am certain we will not be able to even get a good check to his throat and ears so not sure what will happen in a short 90 minutes from now when we show up. I do know that this is something we need to continue to work towards to build less anxiety geared around doctor visits but that does not mean it is easy.
Hopefully Cody will prove me wrong on this one. Send happy thoughts our way.
Nothing saddens me more when I feel very helpless when he gets sick. This is when I truly don’t like autism and I just wish I knew what hurts on him.