“If hugs were snowflakes, I’d send you a blizzard.”

A friend shared this meme this week and it was perfect timing.  It said, “If hugs were snowflakes, I’d send you a blizzard.”  Man, I needed this.  This week autism has been tough. Monday afternoon, Cody came down with a fever. After reaching out to his teachers and therapists, all I would hear is there is a virus stomach bug and some nasal congestion going around. As a parent, with a child who is nonverbal, this means many sleepless nights.

You see, last spring this very similar virus was going around, and Cody had gotten sick in the middle of the night. He had no way of calling out to me or coming to me so he problem solved to his best ability and just slept at the foot of his bed until I came in the next morning.  I for sure did not get Mom of the Year Award for that one.

So, this week, I have been sleeping with the monitor all the way up with video watching his every move to ensure, I could be there for him in the event he needed me.  So fast forward to today.  STILL has just fever.  We have a doctor’s appointment at 2:30 today which leads to the main purpose I had the sudden urge to release and write this blog.

Cody’s well check a month ago was a very tough experience for this little guy. We have used the same doctor since birth, but it was a new office/new environment.  It became evident that we were not going to be able to get his well check completed, the doctor allowed us to come every day that week to help build a routine and comfort level to the environment.  By the 6th visit and having my therapists work with him all week and creating a social story book we read a lot, we were able to get a at least a partial check completed.

5

Hoping to get a break from the doctor, we were not so lucky and now have to go back to the doctor today. We started reading our social story and talking about seeing the doctor as soon as I booked the appointment yesterday.  I am always a half full glass kind of Mom, but the reality is I am certain we will not be able to even get a good check to his throat and ears so not sure what will happen in a short 90 minutes from now when we show up.  I do know that this is something we need to continue to work towards to build less anxiety geared around doctor visits but that does not mean it is easy.

Hopefully Cody will prove me wrong on this one.  Send happy thoughts our way.

Nothing saddens me more when I feel very helpless when he gets sick. This is when I truly don’t like autism and I just wish I knew what hurts on him.

Published by mamalamaneustupa

Bio My name is Shelley Neustupa. I am a mother of two cool boys and a wife of 22 years to my high school sweetheart. My oldest son attends the University of Oklahoma. Boomer! My youngest is in 2nd grade and was diagnosed with Autism and Mixed Receptive Expressive Disorder at age 2. Since his diagnosis, I promised him I would advocate and educate as hard as he works each day in therapy. I began writing and have been able to touch many parents that may be new to this journey providing them with actual experiences (not candy coated), support and resources through my entries. Writing is my therapy and my hope one day that my nonverbal son will be able to take these diaries and speak about his own journey and how autism relates to his own experiences. Who knows he and his older brother may become National Speaker’s one day? Come along on our journey to better understand our lives through the eyes of a boy with autism, his Skilled Companion dog Jude, his big brother (and best friend) and mom and dad. My raw vulnerability captures the everyday moments of our journey and will bring even more awareness. A week does not go by where we do not learn something new about ourselves and I want to share these chapters with you. My Sons Undeniable Strengths… Extremely smart and figures out things quickly. Has a memory that allows him to remember more things than I could ever hope for. Persuasive by his personality and sheepish looks. Overabundance of stamina and strength. Loves the outdoors. Enjoys life and always has fun with an unforgettable smile. You can find us here: Writer: Autism Through His Eyes Facebook Instagram YouTube Pinterest Canine Companions for Independence News Interview Cody and Skilled Companion Jude - Our Story

One thought on ““If hugs were snowflakes, I’d send you a blizzard.”

  1. Dear Shelly, I know we have only met briefly a few times a couple years ago. Regardless , I have so much love for you and your family. Cody brings me joy every time I see pictures and videos of him. Often bringing happy tears. I know how heartbreaking it is when your child is sick and can’t tell you they need help and what’s hurting. Jasper is verbal now but I vividly remember how hard it was when he was sick and unable to communicate. I guess I just want you to know, I’m here, in your corner, sending you love and support from afar. I don’t get on Facebook often so I love that you send the emails!

    Best wishes,

    Sarah French 214-518-4903

    Sent from my iPhone

    >

    Like

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